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.:: Annual Report

Annual Report 2006

Background of the organization:

According to WHO statistics, disabled people account for approximately 10% of the population of Bangladesh, and included among them are a large number of children. It is estimated that as many as three percent of children below 5 years of age and 5 percent of children below 10 years are affected by disability.

Disability has may causes, the most common of which in Bangladesh are lack of maternal education, poor maternal services and pregnancy monitoring, poverty and malnutrition. All too often, disabled children are neglected by society and deprived of opportunity. Very few of them receive any sort of education, either in special schemes or in mainstream schools. Even fewer have the chance to continue their studies beyond the primary level. Despite the increasing number of people with disabilities, there exists, as yet, only a handful of organisations working for the welfare of children with special needs. The serious inadequacy of facilities continues to compound the misery of those parents whose children require extra care and attention.

In response to this need, a few parents, social workers and philanthropists got together in 2003 and established the Tauri Foundation with the purpose of providing services for children with disabilities. Amongst those who made it happen is a mother who reoriented her own education so that she might pursue a relevant degree from the National University. Also, a father who committed his hard-earned income so that his daughter, and others like her, might one day claim their rightful place in society. The founders of Tauri Foundation believe that all children have an equal right to enjoy social facilities and to contribute to the socio-economic activities of the nation To this end, they established the School for Gifted Children, a special needs school at Lalmatia in Dhaka which has proved to be a real labour of love. It started with only 14 pupils, but the number has gradually increased, and today there are as many as 33. This year too, in order to meet the tremendous needs for such services, the Tauri Foundation has opened another school, with 8 students, at Rajshahi.

Vision: A child friendly, Rights based inclusive society, Free of Abuse, Exploitation, Discrimination, for all children irrespective of Religion, Ethnicity, Socio-economic status, gender and Disability.

Mission: The Tauri Foundation, founded in October 2003, is a non profit children's organisation working to ensure a healthy, just and sustainable future for all children in Bangladesh. Tauri's primary mission is to foster collaborative initiatives in Bangladesh across all sectors so as to reduce, and ultimately eliminate, the various determinants that can undermine the health of children both now and in the future.
To support this mission, Tauri is committed to:
1. Establishing long-term partnerships and strategic initiatives with diverse sectors and organisations to help build a more effective and collaborative health movement;
2. Working with parents to educate them about known and suspected links between pre-peri-post natal mishandling, malnutrition, and environmental pollutants which can cause various health problems for the children; and
3. Supporting policies and actions that are based on preventative and precautionary practices to ensure children's pre-peri-post natal issues are better handled, and also to ensure that their susceptibility to nutritional and environmental exposure is adequately addressed.
Program Activities:
The programme of the Tauri Foundation includes special education, therapeutic support, employment oriented training, distance training programme, parents training, organizational capacity building and counselling. The School for Gifted Children, a special needs school, is one of the major projects of the Tauri Foundation. It has two branches one is in Dhaka and another one is in Rajshahi. The aim of the school is to enhance the schooling of children with special needs, to raise awareness and to work to establish the rights of disabled children in the community. To achieve these objectives, it is planned to implement a set of activities. Further details of these activities together with the achievements of the reporting year are provided below.

Extensive Professional Assessment:
The Tauri Foundation has a dedicated assessment team led by a qualified therapist and special needs teacher. Each child is assessed with his or her parents or carers and particular attention is paid to occupational issues, physical and speech problems and deformities. Following this assessment, the Team sets a goal-plan for each child and develops an individual IEP which includes life skills training, behavioural modification and therapeutic support.

School for Gifted Children (SGC):
The right to an elementary education is universally recognised and accepted as a basic human right. In Bangladesh, mainstream schools have neither facilities, accessibility, nor the expertise to enable disabled children to attend. Due to the lack of a proper initiative, not only the child, but also the country, will be affected in long-run. As a result, the skills and potential of disabled children are unfulfilled, and in most cases disabled children grow up to be considered as a burden on society unable to participate in the development of their community or the nation as a whole. At the present time, the Tauri Foundation operates two special needs schools, one at its head office in Lalmatia, Dhaka and the other in Rajshahi. When it was started in January 2003, the School for Gifted children in Dhaka had only fourteen students, but this number has gradually increased to 35.

The school provides regular schooling for physically, mentally and socially challenged children. It follows an effective and appropriate curriculum, and the teachers design a goal plan for each student depend upon individual needs and abilities. In addition to academic activities, the children receive therapeutic and psychological support which helps them to develop organised behaviour so that they can function in daily life activities. The children also enjoy various other co-curricular activities such as sports, games and storytelling as well as a programme of picnics and outings. A multidisciplinary staff team, which includes therapists, special needs teachers and psychologists, ensures the creation of an atmosphere most favourable to the development and education of children.

School time: 9.00 am - 1.00 pm

Student’s age : From 3 to 15 years
No. of students enrolled
  Dhaka Branch Rajshahi Branch
Type of student Male child Female child Total Male child Female child Total
Mentally challenged 02 02 04 01 00 01
Physically challenged 02 04 06 00 00 00
Autism 13 03 16 06 01 07
Others 03 04 07 00 00 00
Total 20 13 33 07 01 08
School Activities: The detailed school activities include daily assembly, one to one cognitive and skills training programme, group activity, therapeutic services, counselling, mainstream education lessons, vocational training, games and role-play.
The special educational program is based on;
01. Applied Behavioural Analysis (Performing an activity in simple steps within structured environment to facilitate the expected part of the activity by using behavioural modification principals)
02. Picture Exchange Communication System (teaching & establishing communication by using structured photographs or images).
03. Sensory Integration (facilitating the central nervous system/higher centres in order to organise thinking & perceptual ability by using different sensory input e.g. vibration, texture, movement related sensations).
04. Neuro-developmental therapy NDT (following normal developmental milestone, facilitating and inhibiting abnormal muscle tone for learning movement appropriately) Proprioceptive Neuromuscular Facilitation PNF is key to the practice of Occupational therapy interventions. The approaches are combined e.g. bio-mechanical, rehabilitative, Community Based Rehabilitation (CBR). The model used is the Canadian Model of Occupational Performance (CMOP).
In addition to education, the children receive the following therapeutic and medical support:
Occupational Therapy
Speech Therapy
Psychological Assessment & counselling
Parents / Carer training & counselling
Medical Check-up
Dental check-up
One to One Activity: To teach specific daily life-skill activities (e.g. dressing, toileting, grooming, eating, school work and play) to the severely challenged children.

Method: Applied Behavioural Analysis - a series of very simple steps of an activity are taught in this session, for example: give and take ability, attention persisting, oral-motor exercises, drawing and writing ability and communication ability etc.

For children with a lesser degree of disability, mainstream education is pursued with the help of special educational props and books. These children will eventually be mainstreamed into conventional schools.

Group Activity:
Method: Open semi-structured group. (music, painting, sand play, water play etc.)

Potential outcomes: The child should be able to learn basic social rules, able to express emotion. He/she should have boosted verbal or non-verbal communication, increased ability to interact dynamically and increased ability to cope within a group.

Therapeutic Service:
Includes a detail assessment, treatment planning, implementation and evaluation. This service is specifically designed to teach the individual positive behaviour, to reduce unexpected behaviour (temper tantrums or hitting others, self-injury, etc), and to facilitate an improved attention span at the optimum level in which the child can function.

Method:
Structured Sensory Integration & Behavioural Modification, NDT, PECS, PNF, CBR principals

Main Activities:
The provision of a sensory diet (proprioceptive, vestibular and tactile input) in a structured manner, carefully checking the required input needed for the autistic child. Provision of NDT & rehabilitative advice for the physically challenged individuals. In addition, parent counselling and educating with regard to the home therapy programme is essential.

Potential Outcomes:
Individuals with autistic features will be able to:
Reduce behavioural problems (e.g. throwing, tantrums etc.)
Reduce restlessness
Organize better (able to discriminate different stimulation coming from environment)
Retain attention at an optimum level
Improve academic skills
Learn daily living activities
Produce speech gradually and develop better communication either verbally or non-verbally
Individuals who are physically challenged, will be able to perform:
Motor movement in the normal anatomical way
Improved hand function
Sitting and standing with or without support
Other daily living activities at a functional level
In addition, in order to maintain a high standard and good synchronization between the home and school programmes, Occupational Therapists train and co-ordinate all those involved with the individual child both at school and at home.

Parent counselling:
Both psycho-social and rehabilitative approaches are employed.

Potential outcomes:
Parents who did not have any previous understanding of disability and its prognosis, and who were thus liable to frustration: these patents get benefit from discussing specific matters with the therapist. At least they now know the limitations and can plan for their child accordingly. By talking with other parents in the group, they also become more confident and can improve on their coping skills. As a result, the structured programme recommended by the school is maintained in more or less the same manner both at school and at home. This is very important for rehabilitation purposes.

Speech Therapy:
Speech Assessments are performed in order to discover speech related problems. Dependant upon the problem, Speech Therapists can then advise parents to administer prescribed programmes both at school and at home.

Psychological Service:
Before preparing a comprehensive programme, the each child undergoes a psychological assessment in order to determine their IQ level and to arrive at a diagnosis of any related psychological conditions.

Home Visit:
Home visits are an important activity of the Tauri Foundation. The teachers and therapists visit children’s homes and assess the home environment. They advise parents if any modification is needed, and also counsel other members of the family in order to create a conducive environment for the proper development of the child.

Dental check -up:
The Tauri Foundation arranges yearly dental check-ups with the assistance of qualified dentists. This year Dr. B.A. K Azad, Asst. Professor (Prosthodontics) of Dhaka Dental College & Hospital, provided dental treatment to every student.


Therapeutic Service:
The school provides therapeutic treatment for children with disability, along with family education. Both physiotherapy and occupational therapy are given to children, with the aim of maximising each child's potential for independence in everyday living. The intervention includes development of skills of ADL, productivity and leisure. Physiotherapy, involves detailed assessment, treatment planning, implementation and evaluation. aims at achieving the maximum potential of movement, reducing spasticity and improving static and dynamic balance. Occupational therapy, on the other hand, aims is to teach the individual positive behaviour, to reduce unexpected behaviour (temper tantrum or hitting others, self-injury, etc) and to raise the attention span to an optimum level so that the child can function in a given activity. The therapist focuses on simple activities (using games, toys and household equipment), so that the children can continue the exercises at home. The families are given home programmes which they can undertake with the children themselves.


Integration into the mainstream school:
Afia Kabir Anila has been integrated into mainstream education this year. She is studying at the British Standard School, an English medium school in Dhaka. Her physical, mental and behavioural difficulties improved significantly while she was at the School for Gifted Children, and it was this which enabled her to gain admission into mainstream school. Her behavioural problems have become far less severe, and she can now cope sufficiently well to be able to study alongside able-bodied children. Her hand function has also improved, and she can hold the pencil.

Daily life skills training (ADL):
Daily life skills training is provided to help children cope with day-to-day activities, and to enable them to attend to their personal needs without assistance. The main aim of ADL is to reduce the child’s dependency on others. It is an effective training process for mentally challenged children. During the current reporting year, most of the children have succeeded in improving their ability to undertake the tasks of daily living.

Parents counselling, workshop and meeting:
Although the role of parents remains indispensable to a child's welfare, most parents are unaware of the best way to handle a disabled child. In order to motivate parents and change negative attitudes, Tauri provides counselling, and arranges workshops and parents meetings. Counselling is a learning oriented process carried out on a one to one basis. If a child is to be helped to develop to their full potential, it is vital to help parents understand the problems as well as to change negative attitudes and prejudices.

Workshop participation:
Members of both the Tauri Foundation and the School for Gifted children participated in the following workshops and training programmes organised by different organisations.

Care Giver's training:
Our culture is to some extent dependent on the carers who look after the child for the greater part of each day. It is therefore very important for the carers to know how to handle and behave with the child. Teachers and therapists at the Tauri Foundation conduct daylong training sessions for caregivers. A total of 50 of these training sessions were held during the current reporting year.


Human Resources Plan:
The Tauri Foundation has a Human Resources Plan which forecasts staff requirement and organises training and exposure visits to similar organisations. In addition, the Human Resources Plan caters for the professional development of each staff member in order that his or her performance may be maximised. This includes in-service training, national and international training and attendance at conferences and seminars organised by both the Tauri Foundation and other organisations. In this way, the Tauri Foundation is able to introduce new ideas or techniques beneficial to the further development of the organisation.

Staff training and workshops:
The Tauri Foundation provides in-house training and also releases staff to participate in training courses organised locally. As well as this, some staff members have gone to India on short training courses designed to further develop their skills and efficiency.

Deaf and Blind International Asian Conference held at BIAM:
Mrs. Marufa Hossain, General Secretary, attended the Deaf and Blind International Asian Conference held at BIAM auditorium from January 29th to 31st January. The National Forum of Organisations Working for Disabled (NFOWD) and Deafblind International jointly organised this conference. A total of 200 delegates from different countries participated. The main theme of the conference was “Deafblindness-Breaking Barriers in Asia”.

Orientation on Disability:
A daylong orientation on disability was held on 24th May 2006. Professor Nazmul Haque of Dhaka University was the facilitator. A total of 45 parents and staff members participated in this orientation training on disability. Different types disability, the causes of disability and how to handle disabled children were amongst the subjects discussed.

Workshop on Autistic Spectrum Disorder:
Ms. Syeda Sohelia Afrus and Ms. Taslima Akter, special needs teachers, attended a 3 day workshop on Autism Spectrum Disorder which was held from 4th to 6th December 2006 in India. The Autism Society of West Bengal organised this three-day workshop for parents and professionals, and it was conducted by Action for Autism (New Delhi, India). The purpose of the workshop was to create a better understanding of autism, and an appreciation of what life is like for those who suffer from the disorder. The workshop focused on the management of difficult behaviours and on developing social and leisure skills. The main speakers were Ms. Merry Barua (Director Action for Autism, New Delhi and Ms. Indu Chaswal (Director of Education, AFA New Delhi).

Workshop on Childhood Disability:
Mrs. Marufa Hossain, General Secretary, attended a four day training course organised by the Bangladesh Protibondi Foundation and held at the Planning Commission in Dhaka from 17th to 21st November.

Introduction to Occupational Therapy:
A daylong workshop entitled ‘An Introduction to Occupational Therapy’ was held at the head office of The Tauri Foundation in Lalmatia. Teachers and staff members attended the workshop.

Wheelchair Mobility Training:
A one-day training course on wheelchair mobility was held on the 28th May. It was conducted by Mahamudur Rahman, Occupational Therapist of the Tauri Foundation. All teachers and staff members attended.

Teachers Skill Development Training:
Mrs. Marufa Hossain conducted a training from 9th to 12th March entitled ‘Teachers Skills Development’. All the teachers, from both the Dhaka and Rajshahi schools attended this training course.

Biwako Millennium Seminar:
On 24th June, Mrs. Marufa Hossain attended a seminar entitled ‘Biwako Millennium’. This Seminar was organised by the National Forum of Organisations Working with the Disabled.

Outdoor activities:
Many parents feel unable to take their disabled child outside the home to public functions and other places. Sometimes this is because they think that the child’s disability might reduce their own social status. In order to change negative attitudes amongst parents, the school organises outdoor activities for the children’s recreation, and to enhance their socialization. Outings give the child an opportunity to learn and experience many things that they would not normally encounter within their home school environment. In the current reporting year, children visited a wide variety of prestigious and educational places. They much enjoyed, not only the actual locations, but also the travelling, and delicious food offered to them.

XindianChinese Restaurant:
In August 2006, students went the Xinadian Chinese Restaurant in Dhanmondi where they enjoyed the delicious Chinese food. The managers of the restaurant welcomed the children and presented flowers to them all.

Annual Picnic:
The school organised the annual picnic in Gazipur. The children took part in various sports activities, and had the chance to take pictures. There was also singing and dancing. The many parents who attended enjoyed the opportunity to have a picnic with their children.

National Disability Day observed:
The Tarui Foundation joined with the National Forum for Organisations Working for Disabled (NFOWD) in order to observe the National Disability Day on 5th April. As part of the programme a rally and discussion session were organised.

Celebration of Ekusey in February:
In February, the children of the School for Gifted School observed Ekusey, the national mother language day. They paid respect to the martyrs at the National Shaheed Minar.

Package Program:
There now exist a number of facilities for physically and mentally disabled children in Dhaka, but such facilities are almost absent in the rest of the divisional and district towns. As a result, children in these areas do not have the opportunity to enrol in a special needs school for regular education. In view of this, the Tauri Foundation started a package programme in 2005 aimed at meeting the needs of children who live outside Dhaka. The major activities offered are assessment, the designing of individual programmes, parent training and follow-up. This year 56 children have been given support under this scheme.
Types Male Female Total
Autism 27 12 39
ADHD 01 00 01
Downs Syndrome 00 01 01
Cerebral Palsy 09 03 12
Developmental & Speech Delay 01 01 02
Sensory Functional Disorder 00 01 01
Total 38 18 56
Profile of Farhan,
Farhan is a ten year old boy who comes from Mohammadpur in Dhaka City. His father, having retired from the army, is now in business. His mother is a housewife. Farhan suffers from Autistic Spectrum Disorder (ASD). The cause of his autism is still unknown, although his mother thinks her son’s may have been injured when he was two months old. He came to the School for Gifted children in 2004. At that time, he had lot of problems. He could not play with other children, had difficult behaviour, was restless, did not make eye contact and had low cognitive ability. In order to help him, the following methodology was employed;

One to one
Picture exchange communication system
Neuro development therapy
American Behavioural Analysis (ABA)
Speech therapy
Physiotherapy
Occupational therapy

Farhan is now greatly improved. His eye contact has increased. He can play with other normal bodied children. His communication skills are improved, and he can use full sentences in his speech.


Income generation:
Income generation means developing, or participating in, some form of commercial enterprise with the intention of making a profit. The profits are then used to support the main work of the organisation. The vocational training of students involves a number of activities suitable for this purpose. The items produced are sold to the parents, local shops and exhibitions. The organisation plans to increase this area of activity in the future.


Fundraising:
Fundraising is an extremely important component of an organisation's success. Since its inception, the Tauri Foundation has struggled to cope with insufficient funds to run the organisation in the desired manner. Additional money must be raised to meet the challenges of the future, which should include the development of existing work as well as expansion. The Organisation considers that fundraising is not simply about generating the resources needed for survival. Sufficient funds must also be raised for expansion and development. The Tauri Foundation believes that an appropriate fundraising strategy helps to create a viable and strong organisation which is able to sustain itself well into the future. With this in view, the Tauri Foundation plans to strengthen its fundraising and promotional activities in order to raise funds for greater sustainability. The Tauri Foundation still depends heavily on its original sources of funding: contributions from local philanthropists and companies. In the future, the Foundation hopes to raise additional funds from the following sources:

- Support from individuals
- Support from fundraising events
- Support from individuals giving their time
- Gifts in kind, logistical support etc.
- Grants from charity organisations like rotary clubs, lions clubs etc.
- Grants from international or national donor agencies
- Support from business organisations/corporate

In the current reporting year, the Tauri Foundation has received donations from Grameen Phone, REHAB, Dutch-Bangla Bank, Partex Group, OTOBI, Swan Group, Sonargoan Health Care Pvt. Ltd. and many individual donors. The Tauri Foundation gratefully acknowledges the help of all these contributors and looks forward to their continuing support in the future.

Visitors from Norway:
Mr. Oddleif Haaverstad, Speech Therapist, Ms. Oshild Jakobsen and Ms. Berit Smith, Special Educators, visited the Tauri Foundation centres in both Dhaka and Rajshahi. The Norwegian visitors were impressed to see the services of Tauri Foundation for children with disabilities. They attended parents and teachers’ meetings and shared their ideas and views.

Special Events

Baishaki Mela (Fair):
As part of the celebration of Pahela Baisakh, 1st Bengali month, the students organised a fair at the school campus. They put on Bangladeshi dress, such as panjabi, paijama, and sharee, and painted their faces as is the Bangladeshi culture. They participated in singing and dancing, and also sold greetings cards to the visiting parents.

Film show:
The children watched a film entitled “The Vanishing Arts of Society” which was screened on the school campus. This was an educational film and the students much enjoyed it. The show was kindly arranged by an NGO in conjunction with the Iranian Cultural Centre.

Immunisation:
The Tauri Foundation immunised the children against measles in line with the national immunisation programme.

Rajshahi Branch Opening:
On 16th January 2006, the Tauri Foundation arranged anopening ceremony for its new branch in Rajshahi. Mr.Mizanur Rahman Minu, the Honourable Mayor of Rajshahi City Corporation, was the chief guest, and the Deputy Director of the Social Services Department, Mr. Aftab Uddin Sheikh, and the Vice President of Rajshai Chambers of Commerce, Mr. Hasen, both spoke as special guests. The opening ceremony was presided over Mr. Ashfaque-ul- Kabir, Chairman of The Tauri Foundation. Mrs. Marufa Hossain, Executive Director of the Organization, gave a welcome speech.

Management of the Organisation:
The Tarui Foundation believes in participatory management for both policy and decision-making. The Executive Committee is the supreme authority with power to execute the development projects, and of intervention on expansions. The meeting of the executive body is regularly held, and the members are dedicated and well briefed. One of the main roles of the Management Board is to ensure that the organisation has sufficient resources to carry out its work. Members of the Board also oversee the development priorities, agreeing plans, monitoring progress and steering the Organisation through good and bad times. Currently, the Organisation's General Secretary acts as the Executive Director and holds responsibility for the performance of all activities in accordance with the Plan. All the staff members of The Tauri Foundation are professional and qualified in their respective fields. They work as a team and are accountable to each other.

Further, Tauri Foundation also has a five member local and overseas advisory board .
Executive Committee
  Name Status
01. Dr. Kazi Shabbir Anwar Chairperson
02. Ms. Marufa Hossain General Secretary
03. Mr.Ansaruddin Ahmed Treasurer
04. Mr.Hasinul Islam Member
05. Dr.Ayesha Hossain Hashamee Member
06. Mr.Syed Azizul Karim Member
07. Ms.Fahima Samad Member
Advisory Board
  Name Details
01. Prof. P.C.Sarker Professor Department of Social Work
University of Rajshahi
02. Prof.Nazmul Haque Prof. IER
University of Dhaka
03. Dr.Shaheen Akter Child specialist
Asst.Prof. BSMMU , Dhaka
04. Dr.Mahmud Hassan Associate Professor
Nanyang Technological University
Singapore
05. Ms.. Kaneez Mustary Consultant Autusim
35 Ezel Court, Munich House,
Helo Glan Rheidol , Cardiff
CF10 5Ns , UK

Able Disable we commemorate together

 

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